we can appreciate the opportunities that such conditions bring when people like Hank Aaron contrast it with extraordinary humility, goodness, and persaverence. I thank God every day for amazing people who contrast evil with goodness and decency.
ALS is relentless, no question. But so are the people fighting this beast. Relentless in our efforts to raise awareness. Relentless in our fight to secure more treatment options. Relentless in our fight to live. We will not back down. Ever.
@egavactip @westcoastsnark Have been some bipartisan, near unanimous winners. Also the Congressional Gold Medal, which is often awarded with bipartisan support. One year ago, almost exactly, went to Steve Gleason.
@TeamGleason @SteveGleason #NoWhiteFlags #ALS #MND #ELA #SLA
OPEN LETTER to those in power: I wake up every night struggling to breathe from ALS, I’m winded walking up stairs, my muscles cramp a lot. Others are in worse shape and dying every day. NOT looking for pity. I AM looking for action on getting ALS patients more treatment options.
One year ago today, I was honored with the Congressional Gold Medal in the Statuary Hall in the US Capitol.
I'll have more after an interview with the @NFL Network.
The world has changed just a little bit in the past 12 months, eh?
I honestly can say that my mental well being is crushed. Yes I asked for the trache and knew I would leave home but I'm sad.☹️ I'm missing my family my kiddos and being home. I'm being transferred in a week to another facility and I'm terrified of the what ifs.
Rest in Peace to Stacy Title, the wife of Jonathan Penner.
Stacy fought a long and hard battle with ALS. Her story inspired hundreds of thousands of viewers and her legacy will live on through her beautiful family and the #Survivor franchise. Our most heartfelt condolences.💛
A world where people living with ALS have the resources and the opportunities to not only continue living, but continue living productive, purposeful, and meaningful lives.
Good words today from @demario__davis about #Terron & what he has been through this year & his #edblock courage award. Heck Demario &his family have been through a lot too. We ALL have this year but part of that job is to be there for our family. No giving up & #nowhiteflags
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